Day 537

Friends
Thank you so much for all your well wishes, thoughts and prayers; they have boosted our spirits in this hard time.
I wanted to update you all on whats happened the past few days. John was released from hospital on Tuesday. He was given crutches to move around which are not every helpful when both your hips hurt but they do help him with getting up. Some test results are back.
The scope showed that John has nonspecific esophagitis. They couldn't find a cause and were told this is not uncommon -The doctor doubts it is GVHD and  best approach is omeprazole and keeping acid secretion down. John's fevers and sickness is a viral infection called parainfluenza III. it also causes the common cold, which tend to be more severe after transplantation. There is no therapy for it other than symptom management.
And as we said before his hip problem is a vascular necrosis.
Next week we will meet with John's bone marrow doctor as well as an orthopedic surgeon and hopefully we can start to make steps towards a treatment that will allow John to return to his normal, young and healthy mobility!
I (Amanda) am currently staying home to take care of John as it hurts for him to move too much and standing for any longer than a few minutes is very uncomfortable. He is still also recovering from the virus he had. Slowly but surely he is regaining his appetite also. Thanks to our friend Jeremy we have ac in our apartment, yesterdays 95f was quite unpleasant!
Thanks again for all your prayers and encouragements :) I feel encouraged in the Lord more each day
Love
Amanda