Tuesday, October 18, 2011

Day 289

He just keeps looking better and better!

John is doing so very well. We still await the big news, does he have B cells? Will he continue to create T cells and will they function effectively. So far all we know is slowly he is getting more and more T cells.

John was due to begin lowering his immune suppressants 3 weeks ago but due to a rash on his face it was delayed. John was prescribed an ointment to help with the rash but we have had many problems obtaining it from our pharmacy so here we are 3 weeks later with nothing! In the meantime the rash seems to be better. John was advised to also put a small amount of 1% hydro-cortisone on his face but it seems every time he does this the rash gets worse! Who knows why? 

As day 289 begins and John feels and looks normal the isolation is starting to become draining and difficult. The first 200 days were so crazy with sickness and hospitalizations that we never really had a second to think but now we have lots of time to think.  John wants so badly to be back at work, with his friends. Just to be able to go the store! 

The original plan at the start of this year was a 12 month isolation period but with all of the setbacks we have encountered and his immune suppressant tapering not even starting yet it is hard to imagine it would not be extended.  Truth is we are too scared to ask the doctors; the idea of his isolation being extended, even if just a month, is devastating. 

And so we pray on, and keep trusting God. We know the promises He has made to us and that his ways are very different to ours.  God out no time limit on His promise, we just know He is faithful. 

Update on our financial support: God has been blessing us so much! We now just need around $200 more a month; over a half of what we started needing!  If you are interested in joining our monthly support team email Amanda at electromand.ywam@gmail.com. Thank you so much for all who have responded to our need!